Much of the language surrounding those living with dementia is in reference to all of the losses they’ve experienced. While those losses are indeed impactful and should be recognized, using only negative language promotes the stigma that their lives are completely defined by their disease. By regulating the language we use, we can avoid reducing dementia patients to a stereotype and recognize them for the wonderful people they are.
Person-Centered Language For Talking About People Living With Dementia
It’s important to choose your words carefully when referring to someone living with dementia. Try to avoid terms like “suffering” or “demented,” which only support the stereotype that those living with dementia are in pain or shouldn’t be taken seriously.
Instead, try using terms like “person living with dementia” or “person with the diagnosis of dementia.” This choice of words reinforces that although they may have dementia, they are still people who have independent thoughts and feelings.
Person-Centered Language For Talking About Caregivers
A major contributor of the negative language surrounding those living with dementia comes from a place of sympathy for their caregivers. Many people who view dementia as a burden feel sorry for those who take on the responsibility of being a caregiver. This stereotype subtracts from the fact that many caregivers mutually benefit from the services that they provide.
When talking about caregivers, try to avoid using terms such as “burden of caregiving” or “caregiver burden.” This contributes to the stereotype that those with dementia have nothing to offer society, and are only a burden to the people in their lives. Instead, use terms such as “effects of caregiving” or “caregiver stress.” Some people prefer the term “care partner” over the alternative title. The interpretation of a caregiver’s role should be left for the caregiver to determine for themselves.
Person-Centered Language For Talking About The Behavior Of People Living With Dementia
For those living with dementia, some days are better than others. It’s an ongoing challenge to manage certain behaviors and actions exhibited by individuals with dementia. It’s important when discussing those behavioral issues to continue the use of a person-centered approach for every situation.
When discussing challenging behaviors of those with dementia, avoid the use of terms such as “wandering” or “agitating.” This type of language is broad, and suggests that behavior is the result of a problem with the person, not their disease. Instead, try using terms like “losing their way” or “responsive behavior.” It’s very important to approach their behavior from a place of respect and understanding.
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